Saturday, November 13, 2010

I just don't understand

-how I can see how smart Mary is and others can't.
-why Mary uses her DynaVox independently at home and at the doctor's, but only HOH at school.
-why I do the majority of programming on Mary's DynaVox when she has 2 speech therapists, an assistive tech. specialist and a teacher.
-why it takes multiple phone calls to GI to get one referral to a motility specialist that I was told was going to happen 2 months ago.
-why Mary's DynaVox accessories have not been approved and arrived yet.
-how come Mary's seizures can't be the kind that can be obvious and able to be well controlled.
-why I can't find a nurse I like to work on Saturdays


ANewKindOfPerfect said...

I have so many similar thoughts about Emily. You are not alone. ((hugs))

Junior said...

wow, we deal with so much of the same stuff. hugs and prayers.

Alicia (aka "Yaya") said...

Chaney it amazes me how far Mary has come in the past year. You are doing an awesome job Mommy!